Archive for May, 2014

Same Mission | New Name

May 30, 2014

As of Friday, May 30th, The CFIDS Association of America will have a new name – Solve ME/CFS Initiative (SMCI). While our name is changing, our mission steadfastly remains the same: We will make ME/CFS understood, diagnosable and treatable…

IOM Committee Meeting 3, Diagnostic Criteria for ME/CFS

May 20, 2014

On May 5, 2014, the IOM Committee held another public meeting concerning their work on diagnostic criteria for ME/CFS. Some very compelling testimonies were given. Access the video testimonies and our written report on the patient comments submitted through our online survey…

Research Digest – May 2014: Post-Exertional Malaise

May 20, 2014

Post-exertional malaise (PEM) is characteristic of ME/CFS – considered a hallmark of the disease.  Despite this hallmark status, research has not defined what PEM is or how to measure it.  Patients describe PEM as a crash that occurs following physical or mental exertion.   In […]

Guest Post: Dr Larry Baldwin on Post-Exertional Debility in ME/CFS

May 14, 2014

Dr. Larry Baldwin, licensed physician and ME/CFS patient, worked with our Scientific Director, Suzanne D. Vernon, PhD to provide comment on post-exertional debility to the Institute of Medicine Committee on Diagnostic Criteria for ME/CFS. We are happy to provide his compelling and intelligent insights here as a guest blog post…

Social Security Ruling Rescinded and Replaced for ME/CFS

May 8, 2014

The Social Security Administration rescinded their standing ruling on ME/CFS (SSR 99 2-p) and replaced it with SSR 14-1p bringing clarity to the evidence needed to determine eligibility. It is important that you know what is expected should you be applying for social security disability. Read more…