Archive for January, 2014

SolveCFS BioBank: Breaking Down Barriers to ME/CFS Research, part 2 of 4

January 28, 2014

The SolveCFS BioBank is an important resource to attract the brightest investigators from the best medical institutions into the field of ME/CFS, lowering the barriers to participation in the field of advancing ME/CFS research. Read more in part 2 of 4 in the series…

Carol Head Addresses the IOM Committee

January 28, 2014

On Monday, January 27th, 2014, Carol Head, Association President and CEO was in Washington D.C. along with several other organization leaders, fellow advocates and patients to take part in the first public meeting of the IOM Committee for Diagnostic Criteria for ME/CFS. Read her full comments and access the “Road to Diagnosis” report we shared.

IOM: Let’s Get It Right

January 10, 2014

The CFIDS Association, along with PANDORA Org and other advocates, has been invited to make a brief presentation to the IOM Committee on ME/CFS. They want to know what primary thing they should keep in mind as they look at the research. We want YOUR thoughts so we can best represent your concerns and make the most of the open session on January 27th. TAKE OUR SURVEY