Archive for June, 2013

A Call for Unity – CFS Advisory Committee, Public Testimony

June 25, 2013

I attended my first CFS Advisory Committee (CFSAC) meeting on May 22nd & 23rd in Washington DC. I was there as the newest staff representative of the Solve ME/CFS Initiative , sitting in as a member of the public vs. an official seat at the […]

ME/CFS Patient-Powered Research Network

June 24, 2013

“Two things broke down the silos for dramatic advancement in AIDS research leading to rapid therapy development. The first was the collective intent of the patient community that came with a shared sense of urgency. The second was that the patient community once excluded from […]

GUT TISSUE BIOPSY SAMPLES STUDIED

June 12, 2013

Researchers in Belgium, Russia, Hungary and the U.S. (Whittemore Peterson Institute) reported results of a preliminary analysis of de-identified gut tissue obtained from 12 patients meeting Canadian and Fukuda definitions for ME/CFS and CFS and eight control subjects. Tissue samples were obtained during clinical diagnostic procedures and […]

CFIDS Association Welcomes Interim CEO, Maryam Aghamirzadeh

June 4, 2013

In anticipation of the April 24, 2013 announcement that longtime Solve ME/CFS Initiative president and CEO, K. Kimberly McCleary, would be leaving the Association, the search for an effective interim CEO was already underway. The best interim CEO is one that would be able to […]